Support Groups for Grandparent Caregivers of Children with Developmental Disabilities and Delays

Note: The Support Groups for Grandparent Caregivers of Children with Developmental Disabilities and Delays program was not responsive to the CEBC's inquiry. The following information was obtained from publicly available sources.

Scientific Rating:
3
Promising Research Evidence
See scale of 1-5
Child Welfare System Relevance Level:
Medium
See descriptions of 3 levels

About This Program

Support Groups for Grandparent Caregivers of Children with Developmental Disabilities and Delays has been rated by the CEBC in the area of: Kinship Caregiver Support Programs.

Target Population: Grandparent caregivers of children with developmental disabilities and delays

Brief Description

Support Groups for Grandparent Caregivers of Children with Developmental Disabilities and Delays provide information on: 1) financial issues, 2) guardianship, 3) respite care, 4) emotional support, and 5) problems interacting with multiple social service systems, including accessing health care, educational supports and housing.

Education and Training Resources

Publicly available information indicates there is a manual that describes how to implement this program, and there is some training available for this program.
See contact info below.

Relevant Published, Peer-Reviewed Research

This program is rated a "3 - Promising Research Evidence" on the Scientific Rating Scale based on the published, peer-reviewed research available. The practice must have at least one study utilizing some form of control (e.g., untreated group, placebo group, matched wait list study) establishing the practice's benefit over the placebo, or found it to be comparable to or better than an appropriate comparison practice. Please see the Scientific Rating Scale for more information.

Child Welfare Outcome: Child/Family Well-Being

Show relevant research...

McCallion, P., Janicki, M. P., & Kolomer, S. R. (2004). Controlled evaluation of support groups for grandparent caregivers for children with developmental disabilities and delays. American Association on Mental Retardation, 109(5), 352–361.

Type of Study: Randomized controlled trial
Number of Participants: 97

Population:

  • Age — Mean=60 years
  • Race/Ethnicity — 79% African American
  • Gender — 94% Female
  • Status — Participants were grandparents caring for children with developmental delays.

Location/Institution: New York City

Summary: (To include comparison groups, outcomes, measures, notable limitations)
This study examined the effectiveness of a support group intervention for such grandparents. Participants were randomly assigned to treatment and wait-list control conditions. After the 3-month posttest assessment, the wait-list control group was given the intervention, and assessed for change 6 months after intervention. Measures utilized include the Center for Epidemiological Studies-Depression Scale (CESD), the Family Empowerment Scale, and the Caregiving Mastery Scale. Results indicate that significant reductions in symptoms of depression and increases in sense of empowerment and caregiving mastery were found for the treatment group. Limitations include generalizability due to ethnicity of participants and educational level of participants, reliance on self-reported measures, and length of follow-up.

Length of postintervention follow-up: 3 and 6 months.

Janicki, M. P., McCallion, P., Grant-Griffin, L., & Kolomer, S. R. (2000). Grandparent caregivers I: Characteristics of the grandparents and the children with disabilities for whom they care. Journal of Gerontological Social Work, 33(3), 35-55. doi=10.1300/J083v33n03_03

Type of Study: One-group pretest-posttest study
Number of Participants: 372 (164 grandparents, 208 grandchildren)

Population:

  • Age — Adults: Mean=60 years, Children: 5-20 years
  • Race/Ethnicity — Adults: 80% African American; Children: Not specified
  • Gender — Adults: 96% Female; Children: 59% Male and 41% Female
  • Status — Participants were grandparents caring for children with developmental delays or other diagnosed disabilities.

Location/Institution: Queens or Bronx boroughs of New York City

Summary: (To include comparison groups, outcomes, measures, notable limitations)
This article provides a preliminary picture of skip-generation caregiving of children with disabilities by describing a population of grandparent carers located in New York City, discussing their needs, identifying some of the concerns and consequences that result from caregiving, and providing recommendations for workers concerned with providing effective outreach and supports. Measures utilized include the Medical Outcomes Study Short Form Health Survey (SF20), and the Center for Epidemiologic Studies Depression Scale (CES-D). Results indicate that grandparents, like others who are carers, expressed a high level of concern over how they were perceived with regard to their caregiving role such as concerns about others seeing them as not being able to care for their grandchildren. Limitations include nonrandomization of participants, lack of control group, and lack of follow-up.

Length of postintervention follow-up: None.

McCallion, P., Janicki, M. P., Grant-Griffin, L., & Kolomer, S. R. (2000). Grandparent caregivers II: Service needs and service provision issues. Journal of Gerontological Social Work, 33(3), 63–90. doi=10.1300/J083v33n03_04

Type of Study: One-group pretest-posttest study
Number of Participants: 268 (97 grandparents; 171 grandchildren)

Population:

  • Age — Adults: Mean=60 years, Children: 5-20 years
  • Race/Ethnicity — Adults: 79% African American, 12% Hispanic/Latino, 6% European, 2% Native American, and 1% Other; Children: Not specified
  • Gender — Adults: 94% Female and 6% Male; Children: 57% Male adn 43% Female
  • Status — Participants were grandparents caring for children with developmental delays or other diagnosed disabilities.

Location/Institution: Queens and the Bronx boroughs of New York City

Summary: (To include comparison groups, outcomes, measures, notable limitations)
This article utilizes a subset of the same sample as Janicki, M. P., McCallion, P., Grant-Griffin, L., & Kolomer, S. R. (2000). This article provides a preliminary picture of skip-generation caregiving of children with disabilities by describing a population of grandparent carers located in New York City, discussing their needs, identifying some of the concerns and consequences that result from caregiving, and providing recommendations for workers concerned with providing effective outreach and supports. Measures utilized include the Medical Outcomes Study Short Form Health Survey (SF20), and the Center for Epidemiologic Studies Depression Scale (CES-D). Results indicate that at least for these grandparent carers, support groups coupled with an agency willing to do casework and advocacy work on behalf of their clientele can provide some reassurance and relief to many older adults facing skip-generation parenting. Limitations include lack of randomization, lack of control group, and lack of follow-up.

Length of postintervention follow-up: None.

References

No reference materials are currently available for Support Groups for Grandparent Caregivers of Children with Developmental Disabilities and Delays.

Contact Information

Name: Philip McCallion
Email:
Phone: (518) 442-5347

Date Research Evidence Last Reviewed by CEBC: January 2017

Date Program Originally Loaded onto CEBC: May 2017